It's pretty challenging having 5 kids at home! Especially when they are all pretty needy- We have Dylan, then Avery who is 5, Livi-3, Dax-almost 2 and Drew who is just a month old. I am doing my best to try to give them all the individual love and attention they all deserve. Thank goodness for my and Ryan's family and friends who have continued to help us out. I can't ever begin to thank them enough and feel like I will eternally owe them!
Our cute, sweet Dawson turned 11 on Thursday. I can't believe he is that old! It freaks me out! Where did the time go? We decided to let him and Dylan invite a few friends to a birthday party celebrating Dawson's birthday and a half-birthday for Dylan since his is in October and I am unsure how he will feel then. I realized he hadn't had a legitimate birthday party since he was 5. Yes, it is under these circumstances that you quickly realize how much more you could and should have done for your kids! It ended up being a lot of fun and it was a good day. :)
Dylan continues to worry what other kids including his friends think of him and that is very sad for me to see. I can't imagine going from completely normal one day to struggling so much the next! He doesn't want to be treated differently. I think the more normalcy we maintain, the more normal he feels. So I still have to get after him when he occasionally throws his fits. And lucky for me, the girls continue to annoy him so they continue to fight which is definitely normal to him! Dax continues to be the lovable Tazmanian Devil while Drew continues to be the little angel baby! We have found an at home tutor that will be coming over twice weekly to help Dylan with his work and keep him a little busy. A little structure never hurt anyone! We also talked about having him go to school for an hour a few times a week. He is still nervous about that because of his vision and hearing problems. I would like to see him do this. I know his friends miss him him so much!
We are still exploring alternative treatment options for Dylan and considering a small variety of options. We are doing our best to provide every single opportunity to him to fight as hard as he can! We have to know that we have done all we could. That is our job as his parents. You always hear that you are your child's only advocate and that has never been more real to me then now. Unfortunately they have been treating Dylan's condition the same way for 30 years and it is up to us to find other alternatives. We continue to pray for the guidance to help us find something that can help him. We have had many suggestions from others and a few have given us some hope! In order for a miracle to happen, you have to believe and have faith that it can. I pray every day for that faith.
It seems like this session of conference has been directed at us. I am so grateful for the inspiration our Prophet and Apostles receive. I am also grateful for the peace and serenity I continue to receive. I am grateful to know with all of my heart, that no matter the outcome of our situation, I will have my family forever... and THAT is how I get through my days. :)
"God didn't promise days without pain, laughter without sorrow, nor sun without rain, But he did promise strength for the day, comfort for the tears and light for the way."