Tuesday, March 8, 2011

Today....

  I have a love/hate relationship with being the first to post on the blog.  The love, is because I get to be the first to write just how much I love Dylan.  From the very beginning of his life he has been the SWEETEST little boy!  He is so kind to all of his friends, siblings, cousins, and even the grown ups!  The boy has about the prettiest blue eyes there ever were!  My kids love Dylan with their whole hearts, which makes me even love him more.  He is an such a wonderful part of our family.
  The hate part, is because none of us want Dylan to be in this situation.  We do not want to have a blog to keep you all informed about treatments, doctor appointments, and medical stuff none of us understand.  We want to be writing about all the normal kid stuff...fun, happy things.  BUT since we are here, this is what the blog will be.  A place for you to read updates, tell Dylan how amazing & tough he is, and read the feelings of many of his family members.
  Today we know this..... Dylan has Brain Stem Glioma.  It looks like it has been there for years, slowly growing. It has now affected nerves in his face, leg, and balance.  His eyes are also having a hard time focusing.  The tumor is inoperable because of its location with all the nerves(I'm sure this is exactly how a dr would describe it...sorry I am not very smart)  They are going to Primary Childrens in the morning(Wednesday) to meet with the Doctor, and discuss the plan.  We are not sure if they will start radiation then, later, admit him, or any of those details.
  Tonight there was a very special spirit at the Shaw home.  Tender words and tears were shared.  Dylans emotions went in waves of happy, sad, & scared.  I can't imagine what his little mind is going through.  I wish I could take it all away for him.  I wish their sweet family could just be together and enjoy this new baby.  I wish for so many things right now but I am trying to focus on the teachings of our Savior.  
  We are promised many times in the scriptures that
 1: We will not be given more than we can handle  2:We are never alone  3: Heavenly Father is in control
When situations like this occur our faith is tested, and we often feel alone.  I know that we are not.  I know that the very person who gave us life, and everlasting life is there for us.  He hears ALL of our prayers, and knows the very very depths of our souls.  He will comfort us, as we seek His comfort.  Dylan will feel all of the fasting and prayers in his behalf.  Mandy, Ryan and all of their 6 babies need the love & prayers.  Our God is also a God of miracles, and right now...I am praying for one...for the this amazing little boy.

Chelsea

26 comments:

  1. Dylan, we love you and we will all be praying and fasting for you! You are an amazing boy and have an amazing family! Hang in there buddy!

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  2. Dylan...I am sure that you don't remember me, but when you were a baby, I held you all the time at dance and "fogot" to learn one of the dances! I loved holding you! You were the best baby ever!! I love your family and will pray for you!

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  3. We love you all and hope you find peace in knowing that you are not going thru this trial alone. You are so loved and you both having amazing family & friends that are praying for you and Dylan. There is strength in numbers and that is something you have going for you. You are dearly loved and we know Dylan can do this. We will keep a constant prayer in our hearts for you all.
    Hang in there you guys - We wish we were closer to show you our love & support!
    Greg & Jess

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  4. Thinking and praying for you all during this difficult time!

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  5. Dylan, you have so many people that love you and are praying for you right now. You are so brave and you can get through this!
    To the Shaw & Jeppesen family....I love you all and you are in our prayers. You guys are so lucky to have eachother at this time, continue holding on to one another.

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  6. All of our love and prayers are coming to Dylan and your family!! Love you!

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  7. Hey buddy we are so so sorry that you are going through a rough time right now, but you know what Dyl, I know that you can make any situation fun! Having fun and laughing is the best medicine for any problem and I know that you are an expert at both! So go take those docs rubber gloves and make balloons out of them! We love you and can't wait till we get to play with you in bear lake again!
    Love,
    Baylee, Hudson, Thatcher
    And the fam!

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  8. We are praying so hard and love you Dylan so so so much!

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  9. Sending prayers for strength and comfort for Dylan and your family!!

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  10. Dylan, you are the sweetest boy I know. I'm so sorry you have to go through this. You are so strong and I know you will be helped. We love you all!

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  11. Dear Dylan,
    I was so shocked to hear this news. You are such a great boy and the finest student ever! I have been so impressed with you always treating everyone right. You are so smart and have done so well this year. You are creative and funny. Remember the writing you did on the light bulb? You are so strong and you WILL beat this. We miss you!! You always make me smile. Don't worry about your school work. The most important thing is YOU! I will keep the things you need the most. Take Care. You have so many friends and teachers who lovd you. Mrs. Bybee

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  13. Dylan, Mandee and family-

    My heart goes out to you during this time. Dylan we have thought the world of you since we met you when you were 3 in tumbling!! You were so nice to Karson and made him feel so comfortable and he had so much fun with you! You have the best smile and laugh! Mandee - you are an amazing person and I have always looked up to you for your strength, and your ability to do a million things at once!! Our family's prayers are with you and Dylan and your family. You are such a strong kid Dylan! May peace and strength be with you at this time. We love you! Angie Kirby

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  14. Ryan & Mandee, we are so sorry to hear about little Dylan - there is nothing harder than watching your child suffer. Dylan looks like a sweet boy and his picture reminds us of Lizzie - these kids that are given these challenges are not made of fluff - they are strong spiritually and have the sweetest temperments and they are truly wrapped in the arms of their Savior as they go through these challenges. We love you guys and we're so sorry you have to experience this level of heartbreak. You will be in our prayers and we are praying for miracles! Love, Ben & Carol Huff

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  15. ryan and mandy, i am just SHOCKED...please know you are in our prayers. i know we live far away but i will be there in a HEARTBEAT if there is anything i can do to help you guys. i am so so sorry. love, adrian

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  16. Chelsea, you wrote this just perfect. There is always tons of thoughts and questions, and the blog like this helps so much so we won't over burden the family by questions. This family is one to look up to and strive to be like. Shaws your in many prayers.

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  17. This is Dylan. (My mom is typing for me what I want to say) I was so happy to meet my doctors today. They were so nice. Thank you for writing all the nice stuff to me, it makes me feel good! Thanks for fasting and praying for me. I love everyone and you guys are a great support! :)

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  18. Dylan, you know we love you. You are stronger than you know, and your spirit is larger than life. You are an amazing boy. We keep you in our prayers daily. Fight this with all your might. Ryan & Mandy you are wonderful parents! We are here for you 100%. We love you so much. J & S Shaw

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  19. Dylan and family,
    YOU CAN DO IT DYLAN!!!! We are Ashton's parents and we sure do think alot of your parents and you. We will pray for you every day...

    The Hurds

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  20. Dylan and family, you don't know me but I've heard about your story and I want you to know I am praying for you and your family. Stay strong and lean on the Lord. He will comfort and strengthen you. I can personally testify of that.

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  21. Shaw family we Love you guys..and we are so so sorry about your Dylan..please know our prayers are with you and your sweet family and if you ever need to run quick and need somewhere to send the kids..know I am always here and my house is always open to your family...May God Bless your Sweet family and may you feel his comforting arms around you at this time..

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  22. Dylan and family we are sending our love and you will be in our thoughts and prayers daily. May the Lord bless you with a wonderful miracle and comfort you through the long days ahead.

    The Skidmore Family

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  23. Dylan and family,
    Just wanted to let you know you are in each one of our family prayers right now! Me and my girls are fasting for you today. Kenidee promised she will never hit you with her braids again! Stay tough....:)

    Sue Ann Kelsey and girls

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  24. Dylan,
    We are so sorry to hear the news. You are such a sweet, good boy. The kind of person moms hope their children make friends with. It is so sad that bad things have to happen to such good people. Our thoughts and prayers will continue to be with you and your family through this hard time. We love you and will pray for you to have strength.

    Natalie Williams and family

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  25. Mandy and Ryan I cant even imagine what your family and Dylan are going through. We think the world of you. Dylan you and your Family will be in out thoughts and prayers!!!!!

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  26. Ryan, Mandy, Dylan and family,
    We talked to "Grandma" LaNae the other day in the store. She told us about the trials that you are going through.
    Know that we are thinking of you and you are now permanent in our prayers. May our Heavenly Father bless and comfort all of you.
    Hugs to you all!!

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