I have a love/hate relationship with being the first to post on the blog. The love, is because I get to be the first to write just how much I love Dylan. From the very beginning of his life he has been the SWEETEST little boy! He is so kind to all of his friends, siblings, cousins, and even the grown ups! The boy has about the prettiest blue eyes there ever were! My kids love Dylan with their whole hearts, which makes me even love him more. He is an such a wonderful part of our family.
The hate part, is because none of us want Dylan to be in this situation. We do not want to have a blog to keep you all informed about treatments, doctor appointments, and medical stuff none of us understand. We want to be writing about all the normal kid stuff...fun, happy things. BUT since we are here, this is what the blog will be. A place for you to read updates, tell Dylan how amazing & tough he is, and read the feelings of many of his family members.
Today we know this..... Dylan has Brain Stem Glioma. It looks like it has been there for years, slowly growing. It has now affected nerves in his face, leg, and balance. His eyes are also having a hard time focusing. The tumor is inoperable because of its location with all the nerves(I'm sure this is exactly how a dr would describe it...sorry I am not very smart) They are going to Primary Childrens in the morning(Wednesday) to meet with the Doctor, and discuss the plan. We are not sure if they will start radiation then, later, admit him, or any of those details.
Tonight there was a very special spirit at the Shaw home. Tender words and tears were shared. Dylans emotions went in waves of happy, sad, & scared. I can't imagine what his little mind is going through. I wish I could take it all away for him. I wish their sweet family could just be together and enjoy this new baby. I wish for so many things right now but I am trying to focus on the teachings of our Savior.
We are promised many times in the scriptures that
1: We will not be given more than we can handle 2:We are never alone 3: Heavenly Father is in control
When situations like this occur our faith is tested, and we often feel alone. I know that we are not. I know that the very person who gave us life, and everlasting life is there for us. He hears ALL of our prayers, and knows the very very depths of our souls. He will comfort us, as we seek His comfort. Dylan will feel all of the fasting and prayers in his behalf. Mandy, Ryan and all of their 6 babies need the love & prayers. Our God is also a God of miracles, and right now...I am praying for one...for the this amazing little boy.