Not great...

 

   The family photo, and this picture were taken at Bear Lake this last week.  We were all looking forward to getting away and going to our "happy place"...Dylan included.  It was a good week spent together...but not one of our typical weeks we are used to spending there.  Dylan is a fish, and would swim from sun up to sun down.  I think a small part of him refused to believe that he wouldn't be able to do the same thing he's done every summer.  He was pretty down and sad once we were there.  It was hard for him to watch all the other kids run and play and swim.  As you can imagine, it was heartbreaking for all of us.  SO many times I wished that Bear Lake could be like the Island on the show Lost.  That all of the sudden, just because we were in Bear Lake, he'd be free of the wheel chair... and all the other horrible effects of his tumor.   Through out the week his overall health was declining.  By Friday, Mandy and Ryan decided to take him in for another cat scan.  The results showed that the tumor has grown by 2cm.   This explained the decline, but is hard to hear.  The tumor is obviously very aggressive right now.  Today has been the worst so far.  He is pretty lethargic, been throwing up, not interested in eating, horrible headache, not really able to move at all, and very slurred speech.   All of these are symptoms of the tumor.  It is heartbreaking to see him like this.  It is so crazy that his mind can be just as normal as could be, but the tumor can be destroying him physically.  He is the same sweet boy as always.   I can't imagine how frustrating this must be for him.   Please continue to pray for him and his family.  Pray for his mom and dad.   I don't know if you all feel like this but our prayer lists are getting soooo long I can barely keep up.  Could you do us one more favor and pray for our newest little family member MASON.  He needs some extra help too..... pretty much we are a wreck  :)

 

I found this on pinterest the other day and decided it was fitting for us right now.