Sunday, July 10, 2011

Not great...

 

   The family photo, and this picture were taken at Bear Lake this last week.  We were all looking forward to getting away and going to our "happy place"...Dylan included.  It was a good week spent together...but not one of our typical weeks we are used to spending there.  Dylan is a fish, and would swim from sun up to sun down.  I think a small part of him refused to believe that he wouldn't be able to do the same thing he's done every summer.  He was pretty down and sad once we were there.  It was hard for him to watch all the other kids run and play and swim.  As you can imagine, it was heartbreaking for all of us.  SO many times I wished that Bear Lake could be like the Island on the show Lost.  That all of the sudden, just because we were in Bear Lake, he'd be free of the wheel chair... and all the other horrible effects of his tumor.   Through out the week his overall health was declining.  By Friday, Mandy and Ryan decided to take him in for another cat scan.  The results showed that the tumor has grown by 2cm.   This explained the decline, but is hard to hear.  The tumor is obviously very aggressive right now.  Today has been the worst so far.  He is pretty lethargic, been throwing up, not interested in eating, horrible headache, not really able to move at all, and very slurred speech.   All of these are symptoms of the tumor.  It is heartbreaking to see him like this.  It is so crazy that his mind can be just as normal as could be, but the tumor can be destroying him physically.  He is the same sweet boy as always.   I can't imagine how frustrating this must be for him.   Please continue to pray for him and his family.  Pray for his mom and dad.   I don't know if you all feel like this but our prayer lists are getting soooo long I can barely keep up.  Could you do us one more favor and pray for our newest little family member MASON.  He needs some extra help too..... pretty much we are a wreck  :)

 
I found this on pinterest the other day and decided it was fitting for us right now.

8 comments:

  1. Our hearts break with yours. May you all be blessed with much comfort and peace at this time. Our thoughts and prayers are with you... What a brave beautiful young man.
    Love, the Huish family

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  2. We love you guys! Our thoughts and prayers are with you constantly! Dylan, you are our hero!

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  3. Hi y'all. I just stumbled into Dylan's blog through a friend on FB. The next time Dylan and his family make it to Bear Lake, we would love to have them come spend the evening at Pickleville as our guests. We just went through a similar (but not the same) thing with our Dad, who passed away last year with Lou Gehrig's disease. We feel for you and know that there are angels bearing you all up in your struggle. Please let us know via our website contact form or our Fb page if you are ever in Bear Lake again and want to come to a show that will help you escape for a while :)

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  4. You are most definitely in our thoughts and prayers. We are sending love and strength your way. Love, Wick and Kassi Udy

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  5. What an amazing young man! He touched the lives of so many people in his short time here with us! The joy he brought to everyone he came in contact with will never be forgotten! To the Shaw and Jeppsen families, Thoughts and prayers are being sent your way. Just know the lord will hold you ALL in the palm of his hand and help you through this difficult time! I am so sorry and my heart is hurting for you. He's going to be an AMAZING guardian angel!! Love to you all.

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  6. I am so sorry for your loss...I don't know your son, but I have been following your blog and can tell he was an amazing boy. You have a very strong and amazing family. My thoughts and prayers are with you guys

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  7. Mandi, i am sooo sorry for you loss... my heart aches for you!! your family will be in my thoughts and prayers!!!!! Families ARE forever!!!!!!! Love you mandi!!

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  8. Dearest Mandi,Ryan and all your extended family etc. I cannot express how my heart goes out to you and what great sorrow is in your souls today. I can only pray that the Holy Spirit will comfort and help you through this very difficult time. It won't be just for now you are going to need a great deal of spiritual guidance for a time. I pray for all of you. May you have all those attending to your needs strength your heart and soul to see you through your difficult time.
    My love, my prayers, my heart, goes to you.
    Always and Forever, Families Are Forever!
    One of your Eternal Aunties Connie G

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